Local teen’s rare disease sparks legislation

After more than three years of fighting for their medical coverage for their son’s rare disease, a Land O’ Lakes family has seen some progress in their quest. Florida Gov. Ron DeSantis signed the Patient Saving Act on June 12, which includes language requiring the state insurance plan to provide enteral formula coverage, regardless of age, condition or intake method. Stephanie Walls, whose … [Read more...]

Teen isn’t defined by rare disease

Remington Walls is just like any other 17-year-old. Except that he can’t eat food. Walls, a junior at Land O’ Lakes High School, suffers from a rare disease called Eosinophilic Esophagitis (EoE). Essentially, all food deteriorates his esophagus — and there is no cure. His only source of nutrition comes via a hypoallergenic amino acid-based liquid formula, called Neocate EO28 … [Read more...]