Local teen’s rare disease sparks legislation

After more than three years of fighting for their medical coverage for their son’s rare disease, a Land O’ Lakes family has seen some progress in their quest. Florida Gov. Ron DeSantis signed the Patient Saving Act on June 12, which includes language requiring the state insurance plan to provide enteral formula coverage, regardless of age, condition or intake method. Stephanie Walls, whose … [Read more...]

Local author hopes his story will help inspire others

Remington Walls hasn’t let his disease define him — and he wants the same for those dealing with similar circumstances. The 18-year-old Land O’ Lakes native has lived a life without regular food or drink since he was diagnosed at age 4 with Eosinophilic Esophagitis (EoE), a rare, incurable disease where all food deteriorates his esophagus. His only source of nutrition has come via a … [Read more...]