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All Children's Hospital

Teen’s health struggle makes her a national voice

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When Mark and Kelly Dees of Land O’ Lakes decided to name their unborn daughter Hope, it was a sign of their unwavering optimism despite devastating news.

What was supposed to be an exciting reveal of their baby’s gender, soon became a moment of sadness after Hope was diagnosed with congenital heart defects.

Hope Dees, of Land O’ Lakes, sits next to her father, Mark, in the office of U.S. Rep. Gus Bilirakis in Washington D.C. The 13-year-old was among many youths who traveled to Capitol Hill to talk to lawmakers about policies to better help kids with health issues. (Courtesy of Amy Gall, BayCare Health System)

“We were told by the first doctor that she wouldn’t live to see her first birthday,” Kelly recalled.

But now, at age 13, Hope has far exceeded that grim diagnosis.

Not only has she undergone multiple operations, she also recently had the chance to make her voice heard by the nation’s lawmakers on Capitol Hill.

Still, it hasn’t been an easy path.

A fighting chance
After hearing the initial troubling news about their daughter, the couple went to St. Joseph’s Children’s Hospital in Tampa, where a second diagnosis showed a brighter outcome.

Hope had a 92 percent success rate of survival, according to Dr. James Huhta, who still cares for her to this day.

She was born eight weeks premature with not only a weak heart, but a mild form of cerebral palsy, among other health complications.

At just 2 months old, she had her first open-heart surgery and spent several months recuperating at All Children’s Hospital in St. Petersburg.

Also, her esophagus did not connect to her stomach and had an abnormal connection to her trachea. This resulted in her being tube fed. Because of her complex situation, doctors waited until she weighed at least 4 pounds before performing corrective surgery.

Hope underwent two more heart surgeries, the second at 9 months old and the last at age 10. These were performed at St. Joseph’s Children’s Hospital.

She had other health concerns, too.

When Hope was 18 months, her parents noticed she was walking unusually.

Hope Dees, 13, stands alongside U.S. Rep. Charlie Crist while on a trip to Washington D.C. She and her parents spoke to Florida legislators about health care coverage for kids with medical needs.

Over the years, she has had to go through extensive physical therapy and orthopedic surgery on her left leg and foot.

“As she grows, the bone grows faster than the muscle,” Kelly explained. “The bone is growing and the tendon is pulling in because it’s not as long as the bone.”

Although Hope uses a leg brace for stability, she still may need another surgery.

Being in and out of hospitals all her life and getting to know medical staff, especially at St. Joseph’s Children’s Hospital, has become routine for Hope.

“This has always been her normal,” Kelly said of her daughter. “For me, it’s nothing but gratitude for all that they’ve done for her over the years, and all they continue to do.”

Speaking aloud for action
BayCare Health System and the Children’s Hospital Association have been working in conjunction for years to bring kids with medical needs to Washington D.C., for the annual Family Advocacy Day.

Amy Gall is a regional communications coordinator for BayCare Health System and has become Hope’s friend.

“We’ve been bringing a family up to meet with the legislators every summer,” Gall said.

Because Kelly is an advocate for protecting Medicaid for kids, Gall knew that Hope would be the perfect candidate to go to Capitol Hill with her family from June 24 to June 27.

Like dozens of other youth from around the nation, Hope had the opportunity to meet with congressional representatives from their respective states, and perhaps help to influence policy.

At Capitol Hill, Hope had the chance to meet with U.S. Senators Marco Rubio and Rick Scott. Also present were U.S. Representatives Gus Bilirakis, Vern Buchanan, Kathy Castor, Charlie Crist, Darren Soto, Ross Spano and Greg Steube.

Along with Hope, Mark and Kelly helped address concerns about stabilizing health coverage for kids.

“As they are adults, taking responsibility of their own health care, it’s important that they have the coverage that they need and the assistance that they need,” Kelly said, in an interview with The Laker/Lutz News, after the family traveled to Washington D.C.

She said she wants assurance that when kids like Hope become adults, that they are guaranteed coverage and not discriminated because of pre-existing conditions.

Hope is currently on Children’s Medical Services, which falls under the Medicaid program.

There is a premium to pay, based on income, but the program has been helpful, Kelly said.

However, she said, a child must reapply annually, or the coverage will lapse.

One year, Hope’s paperwork was late, and she was without coverage for a month.

Changing that system was a topic presented to Congress.

“Some families can’t afford to just abruptly lose their coverage,” Kelly added. “It’s important that they are able to continue to afford their own coverage or doctor visits. It’s not cheap.”

Kelly said the reception offered by the federal lawmakers was sincere, and they appeared to be willing to see what could be done to help kids like Hope.

Still pressing forward
Even after everything Hope has endured, she still views herself as an average teenager, her mom said.

When she has free time, she practices the piano and goes swimming. And as she prepares to enter eighth grade at Dr. John Long Middle School, she plans to sing soprano in the choir.

While she was visiting Rep. Ross Spano’s office, he showed the family a sign engraved with the words: “Never give up.”

Kelly said she’s inspired by the same mantra — and, she added, that her daughter, Hope, has taught her the true meaning of those words.

Published July 24, 2019

Health challenges don’t dim this boy’s optimism

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Eric Piburn’s cheerful demeanor and active nature are not what one would typically expect from someone who has lived the bulk of his life — in and out of hospitals.

Though he’s a lively 12-year-old who enjoys running, jumping and playing with toys — he was born with two congenital heart defects.

Physicians did not expect him to live beyond infancy.

Eric spent his first three years living at All Children’s Hospital in St. Petersburg,  unable to walk or talk.

Eric Piburn loves to show off his race car track, one of his many toy collections. Despite health complications, the 12-year-old enjoys keeping active and having fun. (Brian Fernandes)

“When we first brought Eric home, my husband and I were terrified,” his mother, Randi Piburn, recalled.

Randi and her husband, Dave, already were caring for Eric’s older sister Alex — who also had congenital heart defects, although Eric’s were more severe.

He lived longer than expected, and his health complications have increased, over time.

His body could not properly break down sugars and starches, and he began to suffer from acute renal failure.

He has breathing difficulties, too, requiring the use of an oxygen mask and tank at all times.

He has survived four open heart surgeries.

His mother prepares his daily medication involving fluid and syringes. They both know the drill.

“This is his norm,” Randi said.

“Wearing oxygen is not an issue for him. Being on breathing treatments is not an issue for him,” she added.

Eric also must wear a backpack that pumps his medication into his chest through a tube, and his nutrition follows a daily regimen, too.

He drinks most of his water in the morning. He eats pureed food in the afternoon and evening.

He samples solid food, on rare occasions, but when he does, the portion is only about half the size of a grain of rice, Randi said.

Still, it’s  a long way from the days of a liquid-only diet passed through a feeding tube into Eric’s intestines.

Years of medical treatment have inspired Eric to desire a career as a cardiologist – like the one who looks after him.

“When I grow up, I want to be just like him so I can work on surgeries, do appointments and check-ups,” he said.

He has spent much of his life being treated at St. Joseph’s Hospital in Tampa, which has led to developing friendships with the hospital’s staff.

Birthday party will raise money for expenses
Randi, a former respiratory therapist, gave up her job to care for Alex.

Dave is a full-time nurse.

Finances are challenging for the Wesley Chapel family.

“When you don’t know if you can pay your bill, it’s really scary,” Randi said.

“It’s hard to just buy groceries half the time.”

On top of that are the costs of medications, medical equipment and medical supplies.

An oxygen tank, for example, lasts only a week.

Plus, Eric has been denied for certain health benefits and doesn’t qualify for government assistance.

Dave’s employer covers some expenses, but not others.

Throughout the trials, though, Randi said she’s learned valuable lessons.

“I am giving the best world I can to him (Eric). He is then, in turn, giving back to me love, joy, [and] compassion that he shows people,” she said.

For instance, Eric’s party on Feb. 3 exemplifies his caring spirit, she said.

His birthday was in December, but he wants to have a party so the community can join in.

Eric said the party is for other kids, as much as it is for him.

He empathizes with the challenges that other kids face with health issues.

Going to the hospital can be scary, he said, but he reassures other kids that the staff is there to help them get well.

“As soon as you feel better, the sooner you can go outside, run, play, swing, have fun and be a kid,” Eric said.

And, despite continuing challenges, Eric remains optimistic: “It’s a tough nut to crack, but I’m sure I can crack it in a snap.”

The party will help pay for his medical expenses, but the home-schooled boy sees other benefits, too.

“First of all, I want to be kind to the world and, second, I like presents,” he said.

Eric’s Birthday Party
Where: Old McMicky’s Farm, 9612 Crescent Drive in Odessa
When: Feb. 3 from 11 a.m. to 3 p.m.
Cost: $10 per ticket for those ages 2 and up
Details: Eric Piburn is inviting the community to celebrate his most recent birthday. There will be pizza, drinks, activities and a visit from superhero characters.
Info: Email . Tickets can be purchased online at tinyurl.com/yarpcmna.

Published January 30, 2019

Medical Center of Trinity seeks new ways to improve care

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Anyone who has driven along the State Road 54/State Road 56 corridor during the past few years can easily see that the landscape is rapidly changing in Pasco County.

Subdivisions and businesses are popping up everywhere, and the need for medical services continues to grow.

Responding to that explosive growth and to evolving patient needs is only part of the equation, though. Keeping up with medical advances, staying abreast of new treatment approaches, equipping hospital staff with leading edge technology and adjusting to changes in government regulation, are other elements in Medical Center of Trinity’s quest to set itself apart for its quality of care, said Leigh Massengill, the hospital’s chief executive officer, during a recent North Tampa Bay Chamber luncheon.

Leigh Massengill, the chief executive officer of Medical Center of Trinity, was the featured speaker at a recent North Tampa Bay Chamber luncheon. She shared news that the hospital will be expanding services and will be adding a medical residency program next year. (B.C. Manion)

“We try to strategize very carefully to meet the needs of the growing community, to identify the things that people are going to need — recognizing that health care is changing at a fast pace while we’re trying to make those decisions,” Massengill said.

For instance, “more and more things are being done on an outpatient basis.

“Whoever thought that you could get your total knee replaced in an ambulatory surgical setting and go home the same day? What next?”

While the main hospital campus is now on State Road 54, the hospital had its start in New Port Richey.

“We celebrated our 40th anniversary of providing health care as Community Hospital of New Port Richey, just shortly before we moved in February of 2012 to this new location,” Massengill said.

The hospital had to retool itself and rethink its approaches, as it shifted from taking care of a group of patients with an average age of 82, to one that serves patients ranging from neonatal care to the senior population.

It was quite a culture shock for the organization, the CEO said, and continues to be an adventure as the hospital contemplates how it will grow with the community.

The hospital executive brings a wealth of experience to the challenge. Her background includes working in hospitals ranging from 150 beds to 1,500 beds in both public and faith-based settings. She began her career as a registered nurse and has held a number of leadership roles in nursing and hospital operations.

The hospital sits on a 55-acre campus and is currently occupying about 24 acres.

Additional services to meet area needs
“Since we moved in, we opened a neonatal intensive care unit, which was the first in Pasco County and is the only still, in Pasco County. That has enabled us to keep mommas, that have high-risk pregnancies, within their hometown.

“Before that, we were consistently referring people down to Pinellas and Hillsborough counties for that higher level of care. We’re now able to retain them closer to home, closer to family, especially, if you have a child that’s going to be in an intensive care unit for three weeks after their birth, invariably, you have two other kids at home and who’s taking care of that while you’re traveling 50 miles down to All Children’s Hospital?

“Two years after opening, the hospital began doing open heart surgery, now completing about 150 open heart surgeries annually.

“We keep getting more minimally invasive, as you know, and just about any type of invasive procedure is getting more and more catheter-based, more and more teeny incisions, or more and more robotic,” Massengill said.

The hospital is part of HCA West Florida, which is part of the HCA Healthcare family, and it has  distinguished itself in the HCA system, which includes 180 acute hospitals, Massengill said. The hospital’s surgery/ortho/spine unit was ranked No. 1 within HCA.

She praised the hospital’s staff for the accomplishment, noting the distinction is based on document excellence in a wide range of measures and required substantial work to achieve.

On another front, the hospital has added 14 observation beds, next to the emergency department. That change came in response to new government regulations.

“The government has changed reimbursement. The expectation is, if you show up at a hospital, we have the obligation to determine, as you’re rolling through the door, whether you’re going to require two hospital nights, in order to be considered admitted and an inpatient.

If we’re not certain, we have to keep you in an observation status, do as many diagnostic tests that are necessary to determine whether you’re going to need an inpatient stay, or to stabilize you and have that care continue on an outpatient basis. They give you 24 hours to accomplish that diagnostic testing,” she said.

Current expansion plans on the main campus call for completion of the east side of the fifth floor, and to do the east side of sixth floor for further growth and expansion.

“We continue identifying ways to differentiate ourselves relative to quality,” Massengill said.

The hospital has extended its footprint, to extend its care by adding three freestanding emergency departments, with one in Lutz, Citrus Park and Palm Harbor.

“In those facilities, 95 percent of the patients are treated and released,” she said.

The hospital also plans to add a behavioral health unit for the elderly at the New Port Richey campus.

“We’ve had many physicians come to us, asking us to create this kind of a program,” Massengill said. “We’re looking forward to opening that, once the state gives us the seal of approval.”

The hospital also recently received approval to begin a medical residency program, which will begin in 2019, the hospital leader said.

As it continues to operate in an environment of almost constant change, the hospital remains focused on achieving excellence in staff performance and patient outcomes, Massengill said.

“We know that the consumer of health care is getting more and more savvy, and they shop for excellence before they make the decision,” she said.

Medical Center of Trinity

  • Opened Feb. 7, 2012
  • 288 all-private rooms on its main campus

2017 figures

  • Total annual admissions: 16,222
  • Total annual emergency visits: 77,096
  • Total patients treated: 119,298
  • Active physicians: 380
  • Total employees: 1,482
  • Taxes paid: $8.1 million
  • Charity and uncompensated care: $22 million
  • Salaries, wages and benefits: $113 million

Source: Presentation by Leigh Massengill, Medical Center of Trinity, to members of the North Tampa Bay Chamber

Published October 24, 2018

She tends to much more than cuts and bruises

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When Margaret Polk became a school nurse more than a quarter-century ago, there were full-time nurses in all of Pasco County’s public high schools funded by a grant.

Those days and that funding are long gone.

Now, “most of us have at least two or three schools,” Polk said. She divides her time between Pasco High School and the James Ervin Education Center, and recently picked up a third school because the nurse there resigned.

Margaret Polk, a school nurse who works at Pasco High School and two other schools, was selected by the Florida Association of School Nurses as the 2017 School Nurse of the Year. The photos on the bulletin board behind her are just some of the students she’s interacted with over the years.
(B.C. Manion)

It’s a challenging job, with wide-ranging demands, but Polk — who was named the Florida Association of School Nurses’ 2017 School Nurse of the Year — loves it.

Although she’s picked up additional duties, Polk has always been at Pasco High, and that longevity in one place has its advantages, she said.

She not only knows the school’s current students, in many cases, she knows their parents from when they were students, too.

Polk is deeply familiar with help available through community organizations or government agencies that can provide assistance beyond the school’s resources.

Sometimes, for instance, a student screening will reveal a problem, but parents have no clue where to go from there. And, even when they know where to turn, money can be a problem, Polk said.

So, she turns to a network of community partnerships — including the West Pasco Dental Association, Kiwanis Club, and the Cattleman’s Association — to try to bridge the gap.

“My husband (Ray Polk) was born and raised here (in Dade City). He knows people from way back. I use those connections,” she said.

She also taps into resources available through other agencies and organizations.

She works closely with a nurse practitioner, provided through the Pasco Health Department, who gives onsite support at Pasco High.

Polk also is credited for spearheading an initiative for bringing mental health services directly to students at Pasco High.

“Most people, when they think of school nurse, they actually think of what our clinic assistants do,” Polk said.

But, school nurses handle more than kids with headaches, stomach aches, twisted ankles or symptoms of the flu.

“We are seeing more and more kids come in with chronic illnesses,” Polk said. “I’m seeing a lot more diabetes, a lot more asthma, severe allergies.

“We have so many kids with mental health issues,” she said.

There are students who have special needs and require care plans.

“We need to figure out what we need to do to keep them safe at school, to get them the services they need,” she said.

She also noted that sometimes a school nurse is the first to recognize what could turn out to be a serious health problem.

For instance, a student who has been losing a lot of weight may come into the clinic and require more help than the nurse can provide.

“You call the parent and they don’t have insurance, and they don’t know where to go,” Polk said.

“I can start with my nurse practitioner. We do an evaluation,” she said. If a student needs blood work, she has some funding she can use to pay for it.

“You do get to know the families, and you know what resources they have, or don’t have,” she said.

“Maybe you go out to do a home visit because you can’t get a hold of the parents. You just need to face-to-face talk sometimes,” Polk said.

Sometimes, during those visits, she’ll find that another child in the family has health problems. In some cases, she may end up helping an entire family.

Generally, people are receptive — but not always, she said.

She recalled an instance when a student had severe scoliosis.

The parent was not inclined to seek help. The parent reasoned: “This is what she was given.”

But, Polk reminded the parent there are also people who are given skills to treat the condition.

As for her own foray into nursing, Polk isn’t precisely sure when she made the decision to pursue that career.

But, she thinks the seed was likely planted early.

“My dad was a doctor. My mom was a nurse,” Polk said.

She belonged to the high school health education club and was a Candy Striper during high school, helping out at All Children’s Hospital in St. Petersburg, where she grew up.

“I used to go with my dad to the hospital.

He was at the U.S. Department of Veterans Affairs’ Bay Pines Hospital in St. Petersburg.

“He was in nuclear medicine when it was first coming out. I got to watch them develop programs for it. It just fascinated me,” Polk said.

She also remembers gravitating toward medical topics, when she did science projects.

“I always ended up doing things on blood, and the heart, those types of things,” Polk said.

She wound up working at Pasco High School because her husband, Ray, grew up in the community. He’s now director of Academy at the Farm, a public charter school.

Over the years, as Polk has watched students she has served grow up and have families of their own, she and Ray’s children have done the same.

The couple now has three grown children who are married, and they have eight grandchildren.

Polk said she knew she was being nominated for the statewide honor, but didn’t expect to win.

So, when she received a call from the Florida Association of School Nurses informing her that she’d won the award, she was dumbfounded.

“I sat there, sort of stunned,” she said.

Even though the award was given in January, and Polk has been honored at gatherings in Orlando, and in Gainesville, she’s still somewhat in awe of the distinction.

So many school nurses do such good work, she said, it’s hard to imagine being singled out.

“I am amazed. It’s such an honor,” she said.

Published March 29, 2017

Neonatal services now available in Pasco County

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The Medical Center of Trinity has opened a neonatal intensive care unit, providing a service that previously was unavailable in Pasco County.

The $7 million project is an expansion of the existing obstetrics program at the hospital, at 9330 State Road 54, in Trinity.

Leigh Massengill, CEO of Medical Center of Trinity, left, stands with Cheryl Sherrill and Lynn Smith in the new Neonatal Intensive Care Unit at the hospital. Sherrill is the hospital’s director of women’s and neonatal services, and Lynn Smith is neonatal services manager. (B.C. Manion/Staff Photo)
Leigh Massengill, CEO of Medical Center of Trinity, left, stands with Cheryl Sherrill and Lynn Smith in the new Neonatal Intensive Care Unit at the hospital. Sherrill is the hospital’s director of women’s and neonatal services, and Lynn Smith is neonatal services manager.
(B.C. Manion/Staff Photo)

The unit, which opened on Jan. 4, is commonly called a NICU. It serves a market area including Pasco and Hernando counties, and the northern portions of Pinellas and Hillsborough counties.

The 4,718-square-foot NICU offers advanced levels of care for babies born as early as 32 weeks and weighing at least 1,500 grams.

The project is the latest addition to Medical Center of Trinity, which opened four years ago.

“As this facility was being planned, all along it was contemplated to add neonatal intensive care unit services,” said Hospital CEO Leigh Massengill.

Even before the resurgence of residential growth along the State Road 54 corridor, and the young families that will come along with it, the hospital saw the need for the services, she said.

The hospital saw how many infants and mothers had to be transferred out of the facility for a higher level of care, and it knew it could create a safer and more satisfying visit, if it could manage those services in-house, she said.

“Sometimes pregnant women would come in at 32 weeks, and they weren’t in active labor, but they required in hospital services, and we had to transfer them out because delivery could occur at any time,” Massengill said.

In the past, if a baby arrived at around 32 weeks, it was better for it to be in a facility where the care the baby needed could be immediately provided, said Lynn Smith, neonatal services manager. “The sooner you can get them to definitive care, the better,” Smith said.

Before, Massengill said, the baby had to be transported, which was not ideal.

“It really kind of breaks your heart when you take a newborn baby and pack him up in this scary-looking transporter, and stick him on a helicopter to go flying off to another county, and leaving mother and family, and the rest of the extended family behind, worrying,” she said.

Now, the CEO said, “they either go one way, to the newborn nursery, or they come in for more intensive care.”

Cheryl Sherrill, director of women’s and neonatal services said: “It is a wonderful service to the community, to keep these families together.”

The Medical Center of Trinity has opened a neonatal intensive care unit to provide services to newborns as young as 32 weeks and weighing as little as 1,500 grams. This is a look at one of two NICU bays. (Courtesy of Medical Center of Trinity)
The Medical Center of Trinity has opened a neonatal intensive care unit to provide services to newborns as young as 32 weeks and weighing as little as 1,500 grams. This is a look at one of two NICU bays.
(Courtesy of Medical Center of Trinity)

The new NICU expansion includes 12 Level II NICU beds and an overnight room for families transitioning to taking their babies home.

“We understand, that for us, the birth experience is an event. It’s not like acute care. People have been planning this event for a very long time, and we want to make sure we do everything we can to make this a special event for them,” Sherrill said.

“When sometimes things happen, and babies come a little bit earlier than they were planning on, then, that’s why we have this beautiful NICU down here,” Sherrill said.

The hospital has a relationship with All Children’s Specialty Physicians from All Children’s Hospital, who are providing neonatology services, Massengill said.

“So, they’re always on call to support us. They’re in the facility on a daily basis. They take care of our babies. They interface with the families, with the pediatricians, with the obstetricians, to make sure those babies get the best care possible,” she said.

When there’s enough notice, Sherrill said, “We get the neonatology team involved and the NICU charge nurse, and we start that relationship from when the mom is hospitalized.

“The neonatologists work with the OBs (obstetricians) for the best plan of care, of when to deliver this baby, so we can be prepared, and the team and the family is comfortable, already knowing kind of what’s going to happen at the time of delivery. So, it doesn’t become such an emergent event when it happens,” Sherrill added.

The center uses a family centered approach to care.

“We want to make sure that the family is included in everything,” Sherrill said.

Along those lines, the hospital has extended visiting hours. Two approved visitors are allowed at bedside at all hours, except for 6:30 a.m. to 8 a.m., and 6:30 p.m. to 8 p.m.

“We want the family to be here more often than not, because we know that with giving family centered care, they are an important team member in promoting this baby’s growth and wellness,” Sherrill said.

She’s excited about the hospital’s new services. “I came here specifically for this project,” said Sherrill, noting she moved to the area from Austin, Texas.

The hospital pulls together numerous services that will help premature babies and their families, Sherrill said.

“We have our own speech pathologist, we have our own dietitians, we have our own NICU pharmacists, so we have a lot of support services that you traditionally find in much larger facilities,” Sherrill said.

The hospital also has a licensed clinical social worker dedicated to NICU babies and families, and a family centered care committee. It has educational opportunities for parents and siblings, too.

In addition to its relationship with All Children’s neonatologists, the hospital has registered nurses who are experienced in neonatal intensive care.

By choosing to use a family centered model, the hospital puts the mom in contact with her baby as much as possible, Sherrill said.

“We let the baby tell us what they’re ready for, then us trying to make the baby be ready for,” Sherrill added.

The hospital also works with All Children’s network of providers to help families plug into care in the community after they leave the hospital, helping families to make a smooth transition once they leave the hospital, Sherrill said.

Published January 27, 2016

Young Virginia cancer patient inspired Plantation Palms fundraiser

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Christina Jenks recently had her head shaved for a cause. She’s trying to help put an end to pediatric cancer.

Jenks and her husband Eric are behind a fundraiser planned for Nov. 9 at Plantation Palms Golf Club in Land O’ Lakes. The event combines a golf tournament, head shavings and fun activities for kids and adults, aimed at raising money for St. Joseph’s Children’s Hospital Foundation to support pediatric cancer research.

Christina Jenks shaved her head to battle pediatric cancer. Will you? There are other ways to help, as well, of course. A fundraiser is set for Saturday at Plantation Palms to help fight pediatric cancer. (Photo courtesy of Christina Jenks)
Christina Jenks shaved her head to battle pediatric cancer. Will you? There are other ways to help, as well, of course. A fundraiser is set for Saturday at Plantation Palms to help fight pediatric cancer. (Photo courtesy of Christina Jenks)

The Jenks, who are the founders of Big Heroes 4 Little Warriors, began their crusade against childhood cancer a couple of years ago. It began when Christina Jenks read about a 6-year-old boy in Virginia who was fighting for his life.

One of the things that the little boy, Nathan Norman, said he most wanted for Christmas was cards from his heroes — police officers, firefighters and rescue personnel.

The young boy’s plea touched Jenks’ heart.

She approached her husband, a firefighter with Pasco Fire Rescue, and suggested they get the boy a card and ask firefighters at various stations to sign it.

The simple gesture snowballed into an avalanche of love as word spread. Fire and rescue folks from Orlando to Pinellas County began calling, expressing their desire to get involved.

“The response ended up being overwhelming,” Jenks said. “They wanted to donate helmets, they wanted to donate uniforms. They were making gifts for him. We had stuff coming from everywhere.”

They got so much, in fact, they wound up loading up their Chevy pickup and driving 700 miles to the Normans’ home in Lynchburg, Va., to deliver the loot to the young boy.

That was in December 2012.

When they arrived, the boy’s parents talked to them about the need to help children who have cancer. The Normans had launched their own fundraising organization and wound up giving the Jenks 110 gift bags to bring back to children at St. Joseph’s Hospital in Tampa and All Children’s Hospital.

The Jenks later decided to create Big Heroes 4 Little Warriors to help children in the Tampa Bay area who, like Nathan, are fighting for their lives.

The couple said they felt called to get involved.

“For me, I’ve been in fire rescue for more than 20 years, and helping people is something I love to do,” Eric Jenks said.

“All you have to do is meet one of these children and that’s all it takes – to see the battle they’re fighting, you just want to fight it for them,” his wife added. “That’s what we’re doing, we’re fighting for a need that needs to be filled. These kids need someone to fight for them. That’s what we’re doing.”

If you go
When: Saturday, Nov. 9; Opening ceremony 11:30 a.m., shot gun start for the golf tournament as well as head shaving and family event at noon.
Where; Plantation Palms Golf Club, 23253 Plantation Palms Blvd., Land O’ Lakes
What: Golf tournament, chance drawings, face painting, bounce houses, head shaving, games, arts and crafts, DJs and other activities.
Plantation Palms will donate 10 percent of all restaurant proceeds.
For more information, call Eric or Christina Jenks at (727) 641-6075.