Remington Walls hasn’t let his disease define him — and he wants the same for those dealing with similar circumstances.
The 18-year-old Land O’ Lakes native has lived a life without regular food or drink since he was diagnosed at age 4 with Eosinophilic Esophagitis (EoE), a rare, incurable disease where all food deteriorates his esophagus.
His only source of nutrition has come via a hypoallergenic amino acid-based liquid formula, called Neocate EO28 Splash.
The abnormal disorder has not stopped him from living a normal life, however.
Remington overcame the hardship to become a standout varsity baseball player at Land O’ Lakes High School — and good enough to be selected to play in the Pasco County Senior All-Star Baseball game last year.
He was also a solid student, earning multiple college scholarships.
Remington is now a freshman a Valdosta State University (Valdosta, Georgia) where he’s studying to become an athletic trainer. He is also a volunteer assistant with the Valdosta State baseball team.
Published author can also be added to Remington’s list of accomplishments.
His autobiography, “Homeplate: A True Story of Resilience,” delves into his foodless life, with the hope of inspiring others.
The 118-page book is co-authored by his mother, Stephanie Walls, who shares her memories and insights on coping with the disease from a parent’s point-of-view.
The book will be released on Nov. 25.
“Remington wanted just to kind of motivate people and encourage people that regardless of your situation, find a way to overcome and persevere. There’s some pretty powerful things he has to say in his book,” Stephanie Walls said during a recent interview with The Laker/Lutz News.
The book, which was written this past summer, is particularly geared toward anybody dealing with a life-altering disease, said Stephanie, an eighth-grade language arts teacher at Cypress Creek Middle High School in Wesley Chapel.
“The book is really more of an inspiration from Remington’s perspective,” she said. “We can either choose to wallow over the cards we’ve been dealt in life, or we can just pick up those pieces and somehow make a way to where there is no obstacle that’s going to get in our way.”
Last year, Remington’s life was thrown another curveball when his family’s insurance no longer covered the liquid formula that’s required for sustenance.
Since then, Remington and Stephanie have both advocated for state and federal legislation for formula coverage for medical nutrition. They also continue to work closely with the American Partnership for Eosinophilic Disorders (APFED), a nonprofit advocacy organization for those living with eosinophilic related disorders.
To order the book, visit NowSCPress.com/product-page/homeplate.
Remington Walls book release
Where: Barnes & Noble, The Shops at Wiregrass, 28152 Paseo Drive, Wesley Chapel
When: Nov. 25, 1 p.m. to 2 p.m.
Info: (813) 907-7739
Where: Barnes & Noble Carrollwood, 11802 N. Dale Mabry Highway, Tampa
When: Nov. 25, 5 p.m. to 7 p.m.
Info: (813) 962-6446
Published November 7, 2018