The Laker/Lutz News

Leigh Dittman

Lutz teen and her service dog are off to college

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Leigh Dittman knew she’d need some help when she got to college.

After all, the Lutz resident lives life from her wheelchair.

She was born with a rare genetic disorder called osteogenesis imperfecta, or brittle bone disease.

The disease prevents her body from absorbing needed calcium levels due to a collagen deficiency.

Lutz resident and University of Tampa freshman student Leigh Dittman with her service dog, Nerf. Dittman suffers from a rare genetic disorder called osteogenesis imperfecta, or brittle bone disease, which makes her bones weaker than normal and more prone to fractures. Nerf responds to more than 40 commands, including retrieving dropped items for Leigh, pulling her wheelchair, carrying her backpack, and other tasks that enable her to lead a more independent life. (Courtesy of Canine Companions)

Simply put, the condition makes her bones weaker than normal and more prone to fractures.

“It’s like a sponge,” Leigh said. “It doesn’t matter how much milk I drink; my body can only handle so much.”

The number of people affected with osteogenesis imperfecta in the United States is unknown.

Estimates range from as few as 20,000 and as many as 50,000, according to the Osteogenesis Foundation.

Throughout her school years leading to college, Leigh had a one-on-one aide who would help get her to and from class.

As she geared up for her freshman year at the University of Tampa, though, she wanted more independence.

Leigh put it this way: “With college, I’m training to be an adult, and I can’t be a successful adult if I’m relying on another adult.”

That’s where Nerf enters the picture.

The 3-year-old, black Labrador/golden retriever mix is a highly-trained service dog that responds to more than 40 commands.

He retrieves dropped items like pencils and water bottles for Leigh. He pulls her wheelchair around campus. He carries her backpack. He can even close doors, and turn light switches on and off.

In certain cases, Nerf doesn’t even need to be told what to do.

“He reads what I need,” said the freshman nursing student.

“At home, I’m notorious for dropping my socks when I put my clothes away, so at this point, I don’t even tell him to pick it up. He just sees it and he’s like, ‘I know what you need.’”

The bond between owner and dog goes beyond helping with everyday tasks.

Nerf is always there, at her side
Besides providing practical support, Nerf adds emotional support and companionship, too, when times are stressful, and when Leigh is feeling overwhelmed from her class load and final exams.

“He’ll curl up right next to me, and he’ll just stay there while I get work done; it’s just nice to reach over and have him sitting there,” she said.

Nerf came to Leigh by way of Canine Companions, a nonprofit organization that breeds, trains, and places assistance dogs for people with disabilities.

The organization provides dogs and related services free of charge.

It presently has more than 2,300 active graduate teams nationwide.

Fourteen of those teams — including Nerf and Leigh— are based in Hillsborough and Pasco counties.

Leigh came across Canine Companions a few years ago and decided to apply to the organization’s wait list.

Her family had never had a dog, let alone a pet of any kind.

Naturally, it took a bit of persuading to get the go-ahead from her parents for her to apply for the program. But, they eventually relented.

“I was like, ‘It’s a pet, but it’s a helpful pet,’” Leigh joked.

Since they were matched last summer, the two have been inseparable.

Leigh had to wait about three years after applying to be selected for a service dog.

Nerf and Leigh paired following a rigorous two-week training session at Canine Companions Southeast Regional Center in Orlando.

During training, Leigh learned all of Nerf’s commands and how to properly care for him.

She worked with several other dogs during the training stay, but Nerf proved to be the best to meet her unique needs.

Leigh recalls Nerf being goofy and energetic when they first met. At the same time, he was gentle and sweet, she said.

“I loved him from the beginning; he just fit,” Leigh said.

From the outset, even before training began, Canine Companions trainers had an inkling Nerf would be Leigh’s choice, said Jen Hanes, participant program manager at the Canine Companions Southeast Regional Center.

Hanes said Nerf had the ideal temperament and skills for someone with Leigh’s disability.

Nerf is calm, responsive and loves to work, yet isn’t so high energy that he requires more management on Leigh’s part, Hanes explained.

“There’s more than one dog that could work with Leigh, but we felt like Nerf was just the perfect match for her,” Hanes said.

The match has been life changing, Leigh said, noting it’s now impossible to imagine not having Nerf at her side.

Sometimes, the college student will leave Nerf at home to go to a concert or friend’s house. When she’s without him, she feels “very untethered” and “like part of me is missing.”

“It’s weird if don’t have him,” Leigh said. “I mean, it’s like as if I didn’t have my wheelchair; I don’t leave if I don’t have it.”

The bond they share goes both ways
Leigh depends on Nerf and Nerf depends on Leigh.

“He’s so well-trained and he can do so many things, but at the same time he is a pet. He does need to be cared for and loved, and made sure that he is healthy and things like that,” Leigh explained.

Nerf is a magnet for attention when the two are out and about.

People come up “all the time” to try to pet Nerf, as the two of them the University of Tampa campus, she said.

“I definitely had quite a few people in my classes last semester asking me questions,” Leigh said. “It can be a good conversation because it can be a good education for people that don’t have service animals.”

Meanwhile, Leigh doesn’t ask for special treatment from others.

“I never expect people to make accommodations or to treat me differently,” Leigh said. “I just may need to take the ramp instead of the stairs.”

She prides herself on being an achiever; poised to accomplish many of the same goals of able-bodied people.

At Gaither High School, Leigh graduated at the top of her senior class.

She played in the school’s Chamber Orchestra.

She was president of the American Sign Language Club.

She went to football games and enjoyed hanging out with friends.

“I was very active,”  Leigh said. “I had that drive and the attitude of, ‘I’m going to do well, therefore I will do well.’”

She’s taken that same approach with her to college, with a goal of becoming a neonatal intensive care unit nurse.

With Nerf at her side, of course.

Published February 06, 2019

2015 marked by growth, loss, compassion

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New construction captured many headlines during the year 2015 in The Laker/Lutz News coverage area.

But, so did traffic issues and changes happening in area schools.

Other news chronicled setbacks and tragic losses. But, there were inspiring stories, too.

Tampa Premium Outlets, a 441,000-square-foot mall with 100-plus designer brand shops, opened in October off State Road 56, near the Interstate 75 interchange.

Saint Anthony Catholic School in San Antonio held a dedication ceremony in February, to celebrate the school’s new brick classroom building. (File Photos)
Saint Anthony Catholic School in San Antonio held a dedication ceremony in February, to celebrate the school’s new brick classroom building.
(File Photos)

Florida Hospital Wesley Chapel embarked upon a $78 million expansion project – 2 ½ years ahead of schedule — to add 112,000 square feet and renovate 11,000.

Florida Hospital Center Ice, a new 150,000-square-foot sports facility, broke ground on Feb. 24. It will have an Olympic-sized hockey rink, four other rinks and the ability to accommodate other sports.

Lutz and Land O’ Lakes also saw their share of growth.

New homes and apartments are popping up along the State Road 54 corridor and along portions of Land O’ Lakes Boulevard.

A Lowe’s home improvement store opened on State Road 54, the Land O’ Lakes Community Park underwent a $2.3 million upgrade, and a new Pasco County Utilities Administration building opened off Land O’ Lakes Boulevard, also known as U.S. 41.

Just outside Dade City, an aerial adventure park, known as Tree Hoppers, began operation, and a number of new businesses have settled into the downtown historic district.

Of course, the new development has added to the area’s traffic jams, which won’t be resolved in the short term.

But, there are efforts being made to address the issue.

The Florida Department of Transportation is exploring solutions to address traffic flow at U.S. 41 and State Road 54. There are efforts to extend State Road 56 between Meadow Pointe and Zephyrhills, and, construction work continues at the I-75 and State Road 52 interchange.

On the education scene, there was a changing of the guard in top leadership at Saint Leo University, just outside Dade City. Dr. Arthur Kirk retired, and Dr. William J. Lennox Jr. assumed the top post.

Pasco-Hernando State College also has a new president, with Dr. Timothy Beard being named to the post after the retirement of Dr. Katherine Johnson.

This photo, taken in the 2014-2015 school year, gives an idea of the crowding that Wiregrass Ranch High was experiencing before it went to a 10-period school day. The school went to a staggered schedule this school year, to reduce the impacts of crowding.
This photo, taken in the 2014-2015 school year, gives an idea of the crowding that Wiregrass Ranch High was experiencing before it went to a 10-period school day. The school went to a staggered schedule this school year, to reduce the impacts of crowding.

The state college’s Porter Campus at Wiregrass Ranch also hit a milestone, announcing that it would be surpassing the 3,000-student enrollment mark.

On another front, Sanders Memorial Elementary School reopened in Land O’ Lakes, as Pasco County Schools’ first magnet school. It is a STEAM school, with a curriculum that focuses on science, technology, engineering, the arts and mathematics.

Pine View Middle School also launched an effort to become the public school district’s first International Baccalaureate Middle Years Programme.

And, Wiregrass Ranch High School in Wesley Chapel began operating on a 10-period school day, to reduce the number of students on campus at the same time.

A more permanent solution to Wiregrass Ranch’s overcrowding is expected to occur when the district opens a new school for grades six through 12 that is being constructed on Old Pasco Road.

In another change, the district adopted new boundaries for a new elementary school in Wesley Chapel, off Mansfield Boulevard, which is scheduled to open next fall.

The new school will relieve significant overcrowding at Seven Oaks Elementary. The boundary shifts, which were controversial, will increase enrollment at Denham Oaks Elementary in Lutz.

In other school news, St. Timothy Catholic Church in Lutz opened the Saint Paul II Youth Center and opened a new elementary school to house Mother Teresa of Calcutta Catholic School.

Saint Anthony Catholic School also marked a milestone — dedicating a new brick classroom building in February.

While much of the news in 2015 was about progress and new beginnings, not all of the news was positive.

For instance, the GFWC Lutz Land O’ Lakes Woman’s Club was forced to cancel its 36th annual arts and crafts show, because a sinkhole developed at Lake Park.

Chairman Ted Schrader, holding scissors, slices through the ribbon, as he and other dignitaries celebrated the opening of the Utilities Administration Building.
Chairman Ted Schrader, holding scissors, slices through the ribbon, as he and other dignitaries celebrated the opening of the Utilities Administration Building.

The annual two-day event, which has drawn about 30,000 shoppers a year, was the club’s biggest fundraiser. So, besides disappointing shoppers and about 300 vendors, the cancellation also will reduce the club’s ability to help scores of community organizations and charities.

The year also was marked by the passing of Land O’ Lakes cross country coach Kris Keppel and Laura Hauser, a former non-instructional employee of the year, who worked at Wesley Chapel Elementary before she became too ill to work. Both lost battles with cancer. And, car accidents claimed the lives of Pasco High student Jordan Ivie and Wesley Chapel High.

These deaths inspired demonstrations of respect, generosity, compassion and kindness — to help those grieving their loss.

In another show of support, the community of San Antonio rallied to hold a benefit for Lewis and Diane Riggleman, whose home was destroyed by fire.

Other uplifting moments involved Suellen Smith, the cafeteria manager at Zephyrhills High, who continues her tradition of collecting and giving away dress shirts, dress pants, gowns and dresses to help outfit young men and women for prom, homecoming, weddings and other special occasions.

Another big moment for 2015 involved Leigh Dittman, a Gaither High student from Lutz.

The 15-year-old recently reached a goal she set when she was 7: To raise $1 million for Shriners Hospitals for Children.

The young woman has a disorder known as Osteogenesis Imperfecta, also known as brittle bone disease.

During a recent interview, she said she was motivated to raise the money for Shriners because of how giving it has been to her.

“They are such an amazing group of people, and they’ve given me so much, with my life. It seemed like the right thing to do,” Dittman said.

Published December 30, 2015

Fifteen-year-old raises $1 million for hospital

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Leigh Dittman always knew that she would achieve her goal of raising $1 million for Shriners Hospitals for Children – she just didn’t know she’d do it by age 15.

The Gaither High School student, who has a disorder known as Osteogenesis Imperfecta (OI), said she was motivated to raise the money for Shriners because of how giving it has been to her.

Leigh Dittman poses near the family’s Christmas tree at her home in Lutz. She recently was honored for raising $1 million for Shriners Hospitals for Children. She has a bone disorder known as Osteogenesis Imperfecta, more commonly called ‘brittle bone disease,’ but, she said she’s not defined by her OI. (B.C. Manion/Staff Photos)
Leigh Dittman poses near the family’s Christmas tree at her home in Lutz. She recently was honored for raising $1 million for Shriners Hospitals for Children. She has a bone disorder known as Osteogenesis Imperfecta, more commonly called ‘brittle bone disease,’ but, she said she’s not defined by her OI.
(B.C. Manion/Staff Photo)

“They are such an amazing group of people, and they’ve given me so much, with my life. It seemed like the right thing to do,” the young woman said during an interview at her Lutz home.

She began raising money for Shriners when she was turning 3. She said she’d rather have friends and family give money to the hospitals, instead of giving her presents.

The first year, she raised $5,000.

It grew from there.

When she was 7, people began asking her: “How far do you want to go? What’s your goal?

“As a 7-year-old, I was like, ‘A million dollars seems like a really big number. Why don’t we shoot for that?’ ”

She expected to meet the goal at some point, but not within eight years, she said.

The money was raised by annual events that initially were tied to her birthday, but later were held separately.

The event was a combined live auction, silent auction and raffle event. People could bid on items or buy raffle tickets for all sorts of prizes, including sports memorabilia, theme park tickets and stays at a cabin in North Carolina.

“We would spend the majority of our summer going to different organizations and different companies, and asking them – seeing if they would like to donate. We met great people who would help us continuously throughout the years,” the 15-year-old said. Now that they’ve hit the million-dollar mark, the family plans to take a year off, she said.

Leigh Dittman has a gold plaque on the philanthropic wall at Shriners Hospitals for Children, signifying that she’s responsible for raising $1 million in donations. (Courtesy of Shriners Hospitals for Children)
Leigh Dittman has a gold plaque on the philanthropic wall at Shriners Hospitals for Children, signifying that she’s responsible for raising $1 million in donations.
(Courtesy of Shriners Hospitals for Children)

The young woman was honored on Dec. 14 at Shriners Hospitals for Children, where the hospital and its Board of Governors swapped the teenager’s bronze fundraising plaque for a gold one, signifying donors who have given at least $1 million, according to a hospital news release.

At that ceremony, Board Chairman Tom Edwards described his first encounter with Leigh when she was 5.

Edwards said he was supposed to carry Leigh through an archway during a program. He recalled her telling him: “Mr. Shriner, be careful. I break easy.”

Leigh’s mother, Ellen, said none of this would have happened had she listened to doctors who advised her to have an abortion.

She knew early in her pregnancy there were problems, she said.

“Shriners Hospitals said they were sure they could fix her legs. And, they put her on a waiting list, not even knowing was going on with her, other than we knew that with her legs there was something major going on,” she said.

Leigh was born, via C-section, with five broken ribs and a broken femur that had already healed.

Since then, she’s had 14 surgeries and about 40 fractures.

But, Leigh refuses to define herself by her OI, commonly called “brittle bone disease.”

“I know some people have the same condition, who have made it their entire life. That’s all their life is,” she said.

This is how she defines herself: “I’m a sophomore. I’m an older sister. I’m a violinist. I’m a straight-A student. It’s the afterthought of, ‘And, oh, I have OI,” Leigh said.

Her disorder makes her bones weak.

“That’s why I’m shorter than average. That’s why I break so easily. That’s why I us a wheelchair as my main mode of transportation,” she said.

When people see her in her wheelchair, they often mistakenly assume she has a mental condition, she said.

“I have a lot of people that will start talking to me and speaking to me in a different tone of voice, and speak to me like I’m at a lower maturity level than what I am. I’ll have people come up and talk to me like (I am) a 2-year-old and ask me how I’m doing,” she said.

Once she responds, she said, they realize they’re mistaken.

She has a positive attitude and optimistic outlook, but said she has experienced darker times.

Seventh-grade year was particularly difficult. She had four surgeries, two broken legs, a broken collarbone and a scar infection.

“So, I did, for a little while, go: “Why God, why me? Why did you do this?’

“And then, I realized, it was so I could tell people my story, so I could show, yeah, life’s not always rainbows and butterflies, but you get through it. You’ll be OK.”

She wants to use what she’s been through to help others.

“I want to go into nursing,” she said, adding she’s known that since she was 7.

“Maybe I’ll have that kid that just had spinal fusion,” she said.

She’ll be able to tell that child: “You’re going to be OK, and you’re going to get through this and do whatever you want in life. It’s not going to stop you, because guess what, I did the same thing. I had the exact same story as you. I’m here. I’ve made it. You can do it.’ ”

About Osteogenesis Imperfecta
Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.”
A person is born with this disorder and is affected throughout his or her lifetime.

The disorder is caused by a mutation (change) in a gene that affects bone formation, bone strength and the structure of other tissues.

OI occurs equally among males and females and in all racial groups. It is estimated that approximately 25,000 to 50,000 people in the U.S. have OI. With good medical management and supportive care, the majority of people who have OI will lead healthy, productive lives and can expect an average life span.

  • Source: Osteogenesis Imperfecta Foundation (OIF.org)

Published December 23, 2015